I often forget how far I have come and sometimes need to remind myself what I have achieved in this period of 'Credit' that I am currently living. I refer to it as life 2.0. My wonderful husband has quite the challenge when I am down to remind me that I can actually do far more than I give myself credit for. As such this post is largely so I can see what I have managed to do since I started life 2.0.
Monday 10 December 2018
Friday 7 December 2018
Christmas Edition
Normally at this time of year I would be writing about how difficult Christmas can be and how it has become once of the most emotionally challenging parts of the year for me. Those who know me and have been around long enough know enough about that.
Yesterday was the Christmas breakup for the Brain Tumour Support group and I was lucky enough to get to spend some time chatting with three lovely women. It was wonderful to hear so much laughter and happiness during the meeting. There were of course some tears.
Two of the women I spent time with yesterday had lost their daughters to brain cancer in the preceding 12 - 18 months. One lady had lost her husband to brain cancer a few months ago. It was heart warming to be able to listen to the stories and the memories they have of their loved ones. It was heartbreaking to hear the stories of the pain of losing their loved ones.
For me it brought up a lot of memories from many perspectives. I have lost both of my parents so understand the nightmare of dealing with government departments and banks in that postmortem space. It really should not be as hard as it is. Some of that stems from a lack of understanding and compassion on the part of the departments that we have to deal with and part of it is dealing with out own grief and loss. I also have great compassion for the people who have lost partners and are left trying to keep their memories alive for their children who are sometimes not old enough yet to really understand what has happened. I have enormous compassion for those who have lost a child. We have lost a child and also grieve for a child who is still alive.
After this very special break up, I was very tired and missed my stop on the bus to transfer to the next one so ended up at the PA Hospital station. I was feeling pretty rough physically as well as emotionally. The trips home on public transport are usually the times I use to decompress and manage my thoughts and emotions after meetings. When I got up onto the concourse at the busway to switch to the opposite platform I found a young man collapsed in the lift with his girlfriend who was having great difficulty coping with it all. We eventually, with the able assistance of Hospital staff, got him off to Emergency.
I headed back to campus and caught a lift home with my amazing husband. I am getting better at 'managing' my energy and the responses my body has to exhaustion. My self imposed hospital/ambulance ban has managed to stay in place and I'm really happy that I have been able to avoid the drama.
This Christmas I will be applying my 'management' of energy and symptoms so that I can get through without incident or burning out like a moth in a flame.
What ever you need to do, do it. Take the time to make beautiful memories with your families and friends and make the most of what you have with what you've got.
Be safe and look after each other xxx
Yesterday was the Christmas breakup for the Brain Tumour Support group and I was lucky enough to get to spend some time chatting with three lovely women. It was wonderful to hear so much laughter and happiness during the meeting. There were of course some tears.
Two of the women I spent time with yesterday had lost their daughters to brain cancer in the preceding 12 - 18 months. One lady had lost her husband to brain cancer a few months ago. It was heart warming to be able to listen to the stories and the memories they have of their loved ones. It was heartbreaking to hear the stories of the pain of losing their loved ones.
For me it brought up a lot of memories from many perspectives. I have lost both of my parents so understand the nightmare of dealing with government departments and banks in that postmortem space. It really should not be as hard as it is. Some of that stems from a lack of understanding and compassion on the part of the departments that we have to deal with and part of it is dealing with out own grief and loss. I also have great compassion for the people who have lost partners and are left trying to keep their memories alive for their children who are sometimes not old enough yet to really understand what has happened. I have enormous compassion for those who have lost a child. We have lost a child and also grieve for a child who is still alive.
After this very special break up, I was very tired and missed my stop on the bus to transfer to the next one so ended up at the PA Hospital station. I was feeling pretty rough physically as well as emotionally. The trips home on public transport are usually the times I use to decompress and manage my thoughts and emotions after meetings. When I got up onto the concourse at the busway to switch to the opposite platform I found a young man collapsed in the lift with his girlfriend who was having great difficulty coping with it all. We eventually, with the able assistance of Hospital staff, got him off to Emergency.
I headed back to campus and caught a lift home with my amazing husband. I am getting better at 'managing' my energy and the responses my body has to exhaustion. My self imposed hospital/ambulance ban has managed to stay in place and I'm really happy that I have been able to avoid the drama.
This Christmas I will be applying my 'management' of energy and symptoms so that I can get through without incident or burning out like a moth in a flame.
What ever you need to do, do it. Take the time to make beautiful memories with your families and friends and make the most of what you have with what you've got.
Be safe and look after each other xxx
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