Sunday, 12 May 2024
Mother's Day
I do not look forward to Mother's Day and have not for many years. It is a day that opens up many old wounds in my heart and leaves them bleeding tears.
Thursday, 10 November 2022
One does not simply go to a conference
I was very pleased to attend the Australian Disability Service Conference on the Gold Coast yesterday. It was an incredible collection of amazing human beings working to make life better for people with disability.
Labels:
ABI,
Brain Tumour,
cardiology,
confusion,
ED,
ER,
glasses,
medical,
pain,
perspective,
TBI,
understanding
Wednesday, 17 February 2021
Tuesday, 16 February 2021
10 years in credit
Labels:
ABI,
Brain Tumour,
Education,
FND,
growth,
memory,
neurosurgeon,
Neurosurgery,
recovery,
seizure,
self,
survival
Thursday, 1 October 2020
Friday, 25 September 2020
Saturday, 12 September 2020
Plan B
Life is movement. The more life there is, the more flexibility there is. The more fluid you are, the more you are alive.
Arnaud Desjardins
Thursday, 10 September 2020
Monday, 29 June 2020
Internalised Ableism
This is an image which was recently posted on social media by a friend and it struck me like a cold bucket of water.
Labels:
ABI,
Brain Tumour,
cardiology,
covid,
doctors,
ED,
ER,
Functional Neurological Disorder,
glasses,
ICU,
immunocompromise,
medical,
neurosurgeon,
Neurosurgery,
nursing,
recovery,
seizure,
TBI,
understanding
Thursday, 30 April 2020
A Reality Check.
What immunocompromised people have been doing since they were diagnosed vs what you are being asked to do during the SARS-CoV-2 aka Covid-19 pandemic
Saturday, 11 January 2020
Life - In Nine Parts - Part One
The adventure of life is to learn. The purpose of life is to grow. The nature of life is to change. The challenge of life is to overcome. The essence of life is to care. The opportunity of life is to serve. The secret of life is to dare. The spice of life is to befriend. The beauty of life is to give.
William Arthur Ward
Friday, 10 January 2020
Tuesday, 29 October 2019
CCP Saves Lives
In 2003 I was diagnosed with an ‘inoperable’ brain tumour. It was a devastating blow to our family. We had 4 small children, the youngest was 5 years old.
Thursday, 22 August 2019
Your Questions Answered
If these answers need further clarification please feel free to ask more!
Labels:
ABI,
Brain Tumour,
Neurosurgery,
recovery,
survival,
TBI
Wednesday, 17 April 2019
Taking a step back
This was was in Facebook feed this morning and caught my eye. I noticed that a lot of women were 'loving' and 'liking' it. I wonder if their perspective would change if they took the word women out of it and applied it to people. So I have re written it here...
Sunday, 7 April 2019
Forgiveness and Understanding and Medical Specialists
April 4th 2019 marked 16 years since my initial brain tumour diagnosis. April 4th 2019 was also the day we had a Neuro-oncologist come and speak to our brain tumour support group about Gamma Knife™. It brought a lot of clarity for me in ways I had not expected.
Monday, 1 April 2019
Functional Neurological Disorder (FND)
I have been diagnosed with Functional Neurological Disorder (FND)
Sunday, 24 March 2019
Beauty is in the eye of the beholder
Quite recently I have had the strange experience of considering that I may in fact be beautiful.
Wednesday, 13 March 2019
So many questions!
Flooding through the forest, filling it completely with thick, wet, heavy, fog.
Words
They tumble through the fog like ninjas in a movie.
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